Saturday, June 27, 2015

AGORAPHOBIA AND YOUR AGE!

Agoraphobia has no respect as to age. It can happen to a baby or to a forty old person. Yes I said happen, because you never know when it is going to strike. In a way it's like cancer or any other medical disability that overtakes people, like MS. Also like MS it runs in families. It is not a mental disorder even though mental disorders can occur because of it. This disorder seems to hit women more than men and it seems to hit in the middle to late twenties. Unlike Cancer Agoraphobia won't kill you but it will wreck your life anyway.
I bet each and every one of you who have this can remember when it first started. I certainly remember when mine started. I remember the time the place and the date. The thing with me is I like to solve mysteries and Agoraphobia was certainly a mystery but if you persist and look at things logically you will find the answer. Most Agoraphobics look at their plight as something that is happening to them and there is nothing they can do so they just give up. Others accept it and try and either self medicate with drugs and alcohol and pills and accept a ok kind of life and just try and hang on and get through. I encourage you to become a mystery detective and find your answer. I promise you it is out there. In fact it is in this blog that you are reading. The only thing you have to do is study the posts here and back it all up with a google search. You would think you could just do that for your own peace and happiness wouldn't you? I have faith in you do it! If you need any help hollar I will be happy to help.
Love you all, Yolanda  

Friday, June 12, 2015

AGORAPHOBICS IN ILLINOIS AND PHOTO ID

Hi, are you an agoraphobic and living in Illinois? There is no way for agoraphobics in Illinois to get a photo ID other than going to a driving facility and sitting for one. As we know most agoraphobics are homebound and cannot do this. This leaves them with the dilemma of not being able to vote and a host of other problems that are associated with having a photo ID, homebound or not.

There is a class action suit in the making to try and bring light to this situation. If you would like to be part of this class action suit leave a comment and I will email you back.

Or just leave a comment on your feelings on this problem.

All the best to you all, Yolanda

Saturday, May 30, 2015

ADD, AGORAPHOBIA, AND HYPERPHORIA

For years as a child and into adulthood, Elli Altman suffered from a medical condition she and nobody else seemed to understand - misaligned eyes.
Her teachers and mentors told her she was smart, but because she had problems with school studies and playing sports, they told her she was either lazy or unmotivated and would never succeed.
“I wanted to learn - learn everything under the sun - but it seemed mysteriously out of reach for me,” said Altman of West Bloomfield.  “I could read individual words (was great at spelling them) but my eyes could not make their way across the printed page.”
“I tried every sport, even though I could not catch or hit a ball or determine exactly where the hurdle was so that I could clear it,” she said, recalling many bumps and bruises accumulated from trying athletics. “I knew I didn’t have great vision, but was always told that I did not need glasses.”
Early last year, when Altman was turning 60 and her vision getting worse – “I just could not control the use of my left eye. It felt like it was bobbling at the end of a slinky” – she found Bloomfield Hills-based Vision Specialists of Michigan.
Optometrist Debby Feinberg performed a simple test her father began to develop years ago and corrected Altman’s vision by fitting her with custom-made eyeglasses with a prismatic corrective lense.
“It turns out that my eyes are misaligned - both horizontally and vertically,” said Altman.
“There was a moment during the initial evaluation when, with goggle-like trial lenses tailored precisely for my eyes, I saw the world for the very first time as people with normal vision see the world,” Altman recalled.
“All I could think of was, ‘Oh. That's it.’ Until that moment, I had no idea what normal vision looked like or felt like,” she said. “But, I can tell you this. It was glorious and I am going to remember that one moment forever.”

Feinberg's road to vision misalignment specialist

Debby Feinberg
Debby Feinberg began practicing optometry in Oakland County in 1983 after graduating from Illinois College of Optometry. She joined her father, Paul, now 89, at his practice, the former Mall Optical Center in Waterford.
Over the years, Feinberg began specializing more in the treatment of neurological conditions, including headache and dizziness, that have a visual cause.
Her pioneering work, which helped Altman, assessing patients and developing specially designed corrective lenses for the condition calledbinocular vision dysfunction, addresses a condition where the eyes are misaligned and can cause severe headaches, dizziness, anxiety and neck pain, said Mark Rosner, M.D.,  Feinberg’s husband and the practice’s business manager.
As her practice grew, Feinberg, 57, moved to Bloomfield Hills and renamed her practice Vision Specialists of Michigan. She now has four optometrists along with 25 employees.
“Before 1995, I had a typical optometrist practice. Now my practice is a little different,” said Feinberg. “I do 90-minute eye exams. I only see eight people per day. “Most of my patients get referred by medical doctors.”
In the mid-1980s, Feinberg noticed her brother-in-law, Arthur Rosner, an ear nose and throat specialist, had vision problems caused by eyestrain. He came in for an eye exam and she found he needed prismatic correction. It was her first patient to receive eyeglasses fitted with a prism lense.
“He was so happy it worked,” Feinberg said. “Years passed and I got a call from him in 1995. He told me he had patients who suffered from nausea and felt unbalanced. I discovered they had misalignment in their eyes. Once I leveled their vision with prisms, they felt better.”
Over the next nine years, Feinberg said she helped 500 patients with various misalignment symptoms. Word of mouth spread and soon she needed to expand her practice.
“I got calls from people who said, “How did you learn my secret,” and “When can I come in for an appointment,” Feinberg said. “The proper lenses can help these people."
Randall Benson, M.D., a neurologist who specializes in traumatic brain injury, has referred dozens of patients, including former NFL players, to Vision Specialists over the years.
“I use Debby and Vision Specialists extensively because about 50 percent of the time my patients have binocular vision dysfunction caused by brain injury,” said Benson, who heads up Novi-based Center for Integrated Neurology and runs the non-profit Center for Neurological Studies.
“Many of them have gone years without any satisfactory diagnosis or treatment,” he said. “I have patients come from all over the country and Vision Specialists really are the leaders in our region and nationally, too.”
Benson, who said he is collaborating with Vision Specialists on clinical research on vision issues, said the combination of Vision Specialists experience in assessing and diagnosing the vision problem, and fitting the right prismatic corrective lense makes the practice his go-to referral.
Over the past 21 years, Feinberg has seen more than 7,000 patients. She gets more than 15 emails a day from people all over. She has co-written a book, “If Walls in My Exam Room Could Talk with her husband Mark and Sherry Brantley and posts educational videos on her website.
Feinberg also has started a training program for other optometrists to teach them how to evaluate patients and manufacture the special prism lenses. And she has created a simple 25-question test to help practitioners determine if a patient’s eyes are misaligned.
“We have a lab to cut the lenses. The prism element is so critical. It bends the light both on the vertical and horizontal plane,” she said. “My goal is to move this service out of my office and into other states.”

Focus on child vision misalignment

Altman, who last July left her job of 20 years as admissions counselor at the Roeper School to accept a job as education liaison for the fast-growing optometry practice, said once Feinberg helped to cure her, she knew her next calling.
“As soon as I experienced my new vision with the new glasses, I declared that no child with misaligned eyes should ever go without these glasses,” said Altman. “I knew then that I wanted to work to promote this mission.  I wore my glasses for about two months and then approached Dr. Debby about working for her to find the children with misaligned eyes. “
Feinberg said she has helped dozens of children with misalignment problems and hopes Altman can help spread the word to schools through her contacts.
Experts estimate 10 percent of the population has some form of misaligned eyes. Some children identified as having ADD/ADHD, or another learning disability, have problems with misaligned eyes.
Feinberg said it is very common for children to have misdiagnosis of ADD when they really have misaligned eyes.
“Even a small misalignment can become an enormous part of the problem,” she said. “A prismatic correction sometimes can help children.”
Feinberg said if two eyes are not coordinated, reading can be difficult and confusing.
“Words move around on the page, bump into each other. Kids can be distracted because of it,” said Feinberg, adding that one of her goals is to evaluate more children for these problems.
Altman said typical school eye exams sometimes miss how the eyes work together.
“A child may have 20/20 eyesight, yet have binocular vision dysfunction because the vision test looks at the acuity of each eye, not how they work together,” Altman said.

Thursday, May 14, 2015

AGORAPHOBIA AND OBLIQUE PALSY.

VH and SOP are both forms of Binocular Vision Dysfunction (BVD), which are conditions where one eye sees the image higher than the other eye. Sometimes one eye is physically higher than the other. Sometimes the eyes are aligned correctly but muscle or nerve abnormalities cause the problem.



The most common symptoms are headaches and dizziness. The headaches are usually in the front of the face or in the temples. The dizziness is described as a feeling of being disoriented, lightheaded or dizzy. Those who suffer from Vertical Heterophoria may also have other symptoms in addition to those of headaches and dizziness. These include:
  • Pain symptoms such as face ache, eye pain or pain with eye movement (symptoms similar to sinus problems, migraines, TMJ problems); neck ache and upper back pain due to a head tilt (similar to spinal misalignment symptoms)
  • Balance and coordination symptoms such as motion sickness, nausea, poor depth perception, unsteadiness while walking or drifting to one side while walking (“I’ve always been clumsy”), lack of coordination (symptoms are similar to those seen in patients with MS, sequela of a stroke, an inner ear disorder or Meniere’s Disease)
  • Reading symptoms such as difficulty with concentration (symptoms are similar to those experienced with ADHD), difficulty with reading and comprehension, skipping lines while reading, losing one’s place while reading, words running together while reading (symptoms similar to those seen with a learning disability)
  • Vision symptoms such as blurred vision, double or overlapping vision, shadowed vision (symptoms similar to those seen in patients with MS); light sensitivity, difficulty with glare or reflection
  • Psychological symptoms such as feeling overwhelmed or anxious when in large contained spaces like malls or big box stores like Wal Mart, feeling overwhelmed or anxious in crowds or with driving (symptoms similar to those seen in patients with anxiety or agoraphobia).

Wednesday, May 6, 2015

AGORAPHOBIA AND HETEROPHORIA, IF YOU HAVE ONE YOU HAVE THE OTHER.

AGORAPHOBIA AND HETEROPHORIA, IF YOU HAVE ONE YOU HAVE THE OTHER.

Heterophoria is where the two eyes have difficulty looking directly at the image being viewed. The eye muscles take over and try to correct this condition. But over a long period of time the eye muscle becomes over worked and you end up with the symptoms of agoraphobia. Agoraphobia is not the result of panic, panic is the result of agoraphobia. Some symptoms are strained eye muscles which cause headaches, usually in the front of the face or in the temples. As the muscles strain they become fatigued and they quiver, causing the eyes to move rapidly but minutely, which creates the feeling of dizziness, lightheartedness  disorientation and a sense of imbalance. Other symptoms are face ache, eye pain or pain with eye movement. These symptoms are similar to sinus problems, migraines, TMJ problems, neck ache and upper back pain due to head tilt. Symptoms similar to spinal misalignment problems, motion sickness, nausea, poor depth perception, unsteadiness while walking or drifting to one side while walking, lack of coordination. There are also symptoms similar to those seen in patients with MS or Meniere’s disease. Difficulty with concentration similar to ADHD. Difficulty with reading comprehension, skipping lines, while reading, words running together while reading similar to those seen with learning disability. Also blurred vision, double or over lapping vision, shadowed vision, light sensitivity, difficulty with glare or reflection.

Feelings of being overwhelmed or anxious when in large contained spaces. Like malls or big box stores. Feeling overwhelmed or anxious in crowds seen in patients with agoraphobia and anxiety. This condition may be caused by head trauma, stroke, or neurological disorders. However, most often this is a condition you are born with. It may take years before symptoms occur, as the body will do its best to compensate for these problems. This condition runs in family’s

To correct this problem, the optometrist adds prism to your lenses. Prism is a way of making the lenses such that the image seen by the eye is moved up or down or to the side. Whatever is needed to allow the eye to point in the correct direction without straining the eye muscles. Proper prism correction leads to a reduction of symptoms of (on average) about 80%.



This information was taken from the book “If the Walls of my Exam Room Could Talk” by Debby Feinberg O.D.

Sunday, April 19, 2015

OK NOW WHAT!

You have been diagnosed with HETEROPHORIA. This means you have been to a optometrist that is knowledgeable in this field. Sorry to say very few of them are. I went to Vision Specialists of Michigan. I have also posted a list of doctors in the country that are also knowledgeable. You have been told that indeed your both eyes are not looking at the same thing. You have been fitted with prism glasses. So now the journey  out of your nightmare can begin.

I was so far off with my vision I had to have prisms put in a little at a time. Too much correction would have left me in worse shape than what I came in. Some people find relief and a change right away. In my case it was not like that. Prisms were put in over a period of 3 years. I kind of knew when it was time for more correction. Dr. Debbie told me I had to find "MY NEW NORMAL" and find it I did.

A little at a time I started feeling better. Doing things I could never do before. She told me to keep a journal and whenever I noticed anything that was different to write it down. I started to notice things. Like the trees in my backyard were closer than before. Whenever my neighbor came over to visit when I was in the back yard I started to formulate my escape plan. Standing talking to anybody without any thing to hold on to meant I would get a pitching forth feeling and go into a panic. This day was no different I was waiting for the pitching forth feeling but for some reason it didn't come. I was somewhat anxious but not dizzy. My journal started filling up with things I noticed. My husband and I would go shopping on Fridays to WalMart. At this point I could shop alone while he was in another part of the store. I remember going around an isle in the store and I felt like I was walking at an angle, this was pretty scary and I felt a panic coming on and my hands were sweating. I told myself that this could be the glasses and my New Normal was trying to take hold. Also I noticed if I went to fast pushing the cart the shelf would be whizzing by and all the colors on the packages became like a kaleidoscope going around and around. This feeling was instant panic and time for the door. Agoraphobics do everything fast. We just want to get back to our safe place. Were like mice we dart in and out of our hole.

After having some success with my glasses up to this point I decided to try and work through the problem at WalMart. I forced myself to slow down. I would just stop when this happened and inspect anything that was close. I didn't want to look weird just standing there. After repeatedly doing this the feelings left. Maybe it was about a year. Again you have to realize I was a very bad case some people are not this bad.

I realized what was happening was called desensitization. I had to let the brain learn not to be afraid. It had to start to learn a new way to feel. This is not going to happen overnight but it is going to happen. You will still need a safe person until you start to trust your glasses and your self. The glasses take care of about 85 to 90% of the problem that 10 to 15 % that is left you will probably have to live with. You had nothing before your prism glasses now you are 87% better. Can you say AMEN!

Being a male makes it harder. Men are the breadwinners so there is more responsibility to bring home the bacon but don't be discouraged there are all kinds of ways to do that. Just be more creative in how you do it. And please promise me you won't blame yourself for this. You just got the wrong genes.  Another thing you can think about, look at all the life lessons you have learned while being agoraphobic. Your just down right special for all you have been through. There are a lot of people who need help out there with this problem. Get well so you can help them.

Wishing you all the best. Leave a comment I would love to hear from you, I will answer. Just say HEY if nothing else.

Love you all, Yolanda

Thursday, April 9, 2015

CAN YOU RELATE TO ANY OF THESE SYMPTOMS?

  1. Anxiety associated with being uncomfortable while driving in a moving vehicle.Concern that a dizzy episode will occur while they are driving, and that they will not be able to pull over to the side of the road to get to safety, before harming themselves or others.
  2. Anxiety associated with being in a space with a tall ceiling (i.e. malls, grocery stores, big box stores). All of the multiple stimuli and detail in a large space can overload the visual system and trigger a dizzy episode with the resultant feeling of being overwhelmed.
  3. Overwhelmed when in a group with many people due to the many faces and stimuli triggering dizziness.
  4. Generalized anxiety, sometimes severe enough to cause suicidal ideation.
Please Note: These symptoms are similar to those seen in patients with agoraphobia or anxiety syndromes.
Do these symptoms seem familiar to you. Take the test on the right to see what you can do about them.